The Global SCD Patient Advocacy Ad board meeting of the Novartis held in London, UK on March 15th, 2019 provided the attending representatives of patient organizations the crucial opportunity to deliberate on global SCD issues including the need for the formation of a global SCD patient organization. It is indeed commendable that within a few months of the conclusion of the Ad board meeting, these global advocates moved forward on October 21st 2019, with the registration of the Global Alliance of Sickle Cell Disease Organizations (GASCDO) in Canada.

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